Misophonia Research – United We Stand
A Statement from Dr. Jennifer Jo Brout
The National Institute of Health (NIH) and its sub-division, the National Institute of Mental Health, NIMH) is our largest granting organization for funding research for disorders such as misophonia. However, the NIMH lacks financial resources, and Misophonia is not even on the medical radar. So, we have to turn misfortune into opportunity.
How? For the first time we can choose our own researchers and we can have relationships with them. In the past researchers have been bound by the decisions of these government agencies and unless private funding was available were mostly only able to study disorders that were in the accepted diagnostic manuals (currently, the DSM-5 and ICD-10). Not anymore!
Yes, those were our tax dollars at work, but how much say did you have in what was being researched, or how it was being researched?
I have always had a unique place right at the junction of this system, as a sufferer, parent, psychologist, fund-raiser, and donor. However, we need for all of us to do what we can, no matter how small or how large.
Together we can support this network of excellent researchers and add to the network! We can also make sure that the researchers we work with are studying what is important to us: the sufferers.
The IMNR does not accept donations. We are Misophonia sufferers and families of sufferers who help researchers we believe in raise money for research that we believe in. We only work with researchers we trust, who take us seriously and who care about us as individuals.